End of Life Care in Care Homes: What Families Should Know
Care homes should provide compassionate end of life care. This guide explains what to expect and how to ensure your loved one's wishes are honoured.
Important
Good end of life care ensures people die with dignity, comfort, and according to their wishes. Care homes should be equipped to provide this, though some residents may need hospice or hospital care.
- Where would your loved one prefer to be at the end?
- Are there specific wishes about medical interventions?
- Who should be contacted and involved?
- Are there religious or cultural requirements?
- Has an Advance Decision (Living Will) been made?
- Is there a DNACPR (Do Not Attempt CPR) form in place?
- Pain and symptom management
- Emotional and spiritual support
- Family involvement and support
- Maintaining dignity and comfort
- Respecting wishes and preferences
- Clear communication with family
Good care homes support families through this difficult time - allowing flexible visiting, providing private space, keeping you informed, and offering bereavement support afterwards.
Some residents benefit from specialist hospice input. This might mean visits from hospice staff to the care home, or transfer to a hospice for final care. Discuss options with the care home and GP.
The care home will support you with practical matters - registering the death, collecting belongings, and arranging viewings if wished. Ask about their bereavement support services.
Marie Curie Support Line: 0800 090 2309. Cruse Bereavement Support: 0808 808 1677. Hospice UK can help find local hospices. Care Directory: 0808 501 0191
Frequently Asked Questions
Can someone die in a care home rather than hospital?
Yes, many people prefer to remain in their care home at the end of life. Good care homes provide appropriate end of life care, though some may need specialist hospice input.
What is an Advance Decision?
An Advance Decision (sometimes called a Living Will) is a legal document stating treatments you would refuse in future if you couldn't communicate. It should be discussed with doctors and included in care plans.
How do I raise end of life wishes with the care home?
Ask for a care plan review focused on end of life preferences. Many homes use advance care planning approaches. It's better to discuss while your relative can participate if possible.
What support is available for families?
Care homes should offer flexible visiting, private space, clear communication, and bereavement support. External support includes Marie Curie, Cruse Bereavement Care, and local hospices.
Need More Help?
Support Organisations
- Age UK:0800 678 1602
- Carers UK:0808 808 7777
- Alzheimer's Society:0333 150 3456
- Parkinson's UK:0808 800 0303
Care Directory Support
Sources & References
- Marie Curie
- Hospice UK
- Cruse Bereavement Care
- NHS